Why is this topic so important? There are many reasons why the Burzynski clinic story is important. It’s a great example of how medical care SHOULD NOT work, how some can claim to be saviors and not have the evidence to back it up, how people are promised false hope. Just being aware can MAYBE stop this from continuing to chew up the unfortunate who are not aware of the serious problems with this dubious cancer treatment.
The parents of Pride of Reading Child of Courage winner, four-year-old Amelia Saunders who died in January, say they were told she had a 54 per cent chance of survival with the clinical trial in Houston, Texas.
However mum Chantal Saunders, 36, believes the actual figure was just one per cent.
Dad Richard, 35, says he has only found two patients of Dr Stanislaw Burzynski with the same rare brain tumour as Amelia who survived long-term.
Mr Saunders, from Lower Earley, said: “It didn’t work for Amelia but we absolutely know it works for other people.”
“I think the figures Panorama were given show there was 700-odd patients they treated and something like 15 per cent survived over five years. If you look at all brain tumours that’s almost identical to any other treatment.
“If you look at Amelia’s tumour alone you’re looking at almost zero per cent.”
After finding out about Burzynski’s clinical trial, which has been running for 20 years, Amelia’s family decided to raise the money needed for the ‘antineoplaston’ treatment – a staggering £250,000 – in just a few weeks through donations.
In November last year Dr Burzynski told the family a new scan showed Amelia’s tumour was breaking down. UK doctors at Great Ormond Street Hospital in London said it actually showed the tumour was continuing to grow.
The family decided to stop the Burzynski treatment a few weeks later.
After Amelia’s death the family has donated the rest of the money to various charities and cancer research facilities, among them the University of Nottingham.
I don’t know what else to add. There are stories upon stories of those for which this treatment failed. And the critical thinking community has clearly pointed out why. Yet it continues. He makes money. People die. There is no good evidence that this works. At all. In fact, there is evidence that the patients suffer. So do the families.